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Charlie Gard: 'Last precious moments' for parents with their son

Charlie Gard: 'Last precious moments' for parents with their son
From BBC - July 24, 2017

Charlie Gard's parents are spending their "last precious moments" with their terminally ill son after ending their legal fight to take him to the US for treatment.

Lawyers said Chris Gard and Connie Yates want to spend the "maximum amount of time they have left with Charlie".

The couple ended the case after a US doctor told them it was now too late to treat Charlie's rare genetic condition.

Great Ormond Street Hospital has not said when his life support will end.

But Mr Gard and Ms Yates, from Bedfont, west London, said Charlie would not reach his first birthday on 4 August.

Charlie has encephalomyopathic mitochondrial DNA depletion syndrome. He has brain damage and cannot move his arms or legs.

Scan results

His parents had asked Mr Justice Francis to rule that their son should be allowed to undergo a trial of nucleoside therapy in New York, a move opposed by London's Great Ormond Street Hospital, which argued it would be "futile".

The Family Division of the High Court heard on Monday that US neurologist Dr Michio Hirano was no longer willing to offer the experimental therapy after he had seen the results of a new MRI scan last week.

Speaking outside court, Mr Gard said: "We are now going to spend our last precious moments with our son Charlie, who unfortunately wo not make his first birthday in just under two weeks' time.

"Mummy and Daddy love you so much Charlie, we always have and we always will and we are so sorry that we could not save you."

Mr Justice Francis said he hoped lessons could be learned from the "tragic" case.

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