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Endometriosis: My life full of pain

From BBC - September 5, 2017

Endometriosis is not just painful periods, it's a chronic condition in a league of its own.

One in 10 women has it yet, in the UK, it takes on average seven years to get it correctly diagnosed by a doctor - something experts want to change.

With endometriosis, tissue that behaves like womb lining is found in other bits of the body, causing nasty symptoms.

Amelia Davies was 12 when she got her first period. She soon came to dread her "agonising Auntie Red".

"At times it was so bad I could not go to school. I missed loads of days. The pain was really intense, with lots of different types - stabbing, cramping and burning. I was so bad I could not walk or get out of bed."

New guidelines for the NHS aim to reduce delays in diagnosis and save women years of unnecessary distress and suffering.

Crippling pain

Amelia first explained her symptoms to her GP and then a few different doctors, but they could not find anything wrong.

"Finally, they agreed to send me to hospital for an ultrasound scan.

"So, there I am sitting in the hospital waiting room in full school uniform with dad laughing and joking about to try and keep me calm. It felt like people in that waiting room were giving me dirty looks, and assuming I was there for a pregnancy scan or something. I felt judged."

The scan revealed she had a cyst on her ovary, plus endometriosis.

When a woman with endometriosis menstruates, the misplaced womb tissue bleeds too, causing crippling pain and some rather unusual symptoms.

Endometriosis facts

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