'The seizures have got more frequent and more violent'

From BBC - November 25, 2017

"It's really frightening. You think 'is she going to be ok or do I have to phone for an ambulance again?'.

"What's she going to be like when she comes round? It's a daily struggle".

Kiley Lay's daughter Katie suffers from epilepsy. The 17-year-old from Essex has had the condition since she was two-years-old. but recently her illness has taken a turn for the worse.

"The seizures have got more frequent and more violent. She will try and scratch herself and pull her hair. She's had 124 seizures since April."

'Not good enough'

Katie was having daily seizures in the summer, so her family turned to their GP for help.

They were told their daughter could be referred to a neurologist - but there was a waiting list.

The earliest she could see a neurologist would be February next year.

Kiley says: "We need the appointment brought forward because Katie's seizures were getting more prolonged".

Following a recent visit to A&E, a request for an urgent referral was made for Katie and she is due to see a consultant who specialises in epilepsy in early December.

But she will still have to wait until February to see a neurologist.

Katie said: "It made me angry because I ca not really wait that long. I would love to be a free spirit and live my life."

A spokesperson for Basildon and Thurrock University Hospitals NHS Foundation Trust told the programme:"There is a national shortage of neurology consultants and the trust has been proactively working to recruit specialist doctors."

It added one consultant was due to start in March 2018 and the trust was advertising for another.

'Failing patients'

Earlier this year, a report published by the Neurological Alliance found that that services to diagnose, treat and provide on-going care are failing patients across the spectrum of neurological disorders.

It surveyed 7,000 neurology patients in England about their experience of getting access to care and treatment.

It found that 23% waited more than 12 months to see a neurological specialist after their first visit to a GP.



Continue reading at BBC »