Home Office denies medical cannabis pleas for boy age six

Home Office denies medical cannabis pleas for boy age six
From BBC - February 18, 2018

Requests for a medical cannabis licence to help a boy whose rare form of epilepsy improved after taking the drug have been denied by the Home Office.

Six-year-old Alfie Dingley, from Kenilworth in Warwickshire, suffers up to 30 violent seizures a day.

His parents want to treat him with medical cannabis oil, which is illegal in the UK.

The Home Office said the drug "cannot be practically prescribed, administered or supplied to the public".

A spokesperson added that it can only be used for research.

Alfie's mother, Hannah Deacon, said "you have got to fight for your kids, I want to know that I have done everything I can".

Members of the all-party parliamentary group (APPG) on drug policy reform is calling on the government to assist with Alfie's plight.

Ms Deacon said Alfie went to the Netherlands to take a cannabis-based medication in September.

She said that while there, the medication, prescribed by a paediatric neurologist, saw his seizures reduce in number, duration and severity.

At one point while in the UK, Alfie had 3,000 seizures and 48 hospital visits in a year, but while abroad he went 24 days without a single attack.

"It's very rare and very aggressive, there's only nine boys in the world with Alfie's condition," Ms Deacon said.

"We never imagined how well it would work. He's just a six-year-old boy, he deserves a happy life. We have found something that makes him happy and now we have got to take that away."

Ms Deacon said his cannabis dose was "very small" and he was taking three drops of the oil, which is made using whole plant cannabis.


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